I’ve been recently convinced that I need to start writing about my pain. Ultimately, what follows will be a chapter in a book. Perhaps it can be helpful to those who are concerned about what the future holds in these uncertain times. Sorry, no recording this time. This week, this is what I have to offer:
Oh, my brothers and sisters who are in pain and suffering, my heart cries out with you.
I know your confusion, your hurt, your anger at God, your frustration when others don’t understand. I know how insensitive well-meaning friends can be, hurtful without even realizing it. I know the dark lonely hours you spend, wondering if it will end, why it won’t end, why won’t God just do something?
This is for you. This is for me. This is for your loved ones who suffer with you. This is for us.
This is also for those who watch our suffering and don’t understand. You have compassion, but you don’t know exactly what to think, or how to act around your struggling friends.
This is also for those of you who secretly suspect that there must be some reason, perhaps a hidden one, why other people suffer and you don’t. You may not say it, but it crosses your mind that perhaps we suffer because of hidden sin, or because we spoke bad things into our lives. Perhaps we poor souls failed to follow the simple rules for godly living that will result in peace and prosperity for everyone wise and disciplined enough to stay on the path. To you, especially, I say: pay attention. Your souls are in grave danger. Give up pride, seek humility, read on and learn, lest you find your hands empty on the only day true rewards are given. I don’t give such warnings lightly.
Let me begin with my story. To be clear, I don’t think I have suffered more than anyone else. I am not competing with anyone here to see who has it worse. If you want to claim your suffering is worse than mine, I won’t argue one bit. I freely admit that I know dozens of people that I would never want to trade places with. That’s not what this is about. What I do want you to know that, at least in some way, I do know what suffering is. I am in it, even as I write this.
I am in pain.
Physical pain. Severe, constant, relentless, unending pain.
It started with a kidney stone. Not all kidney stones are equally bad. But the worst kidney stones, what I call “the real kidney stone experience,” is generally the worst pain anybody ever experiences in one’s life while remaining conscious. I have spoken with several women who delivered babies without any painkillers, and who have also had kidney stones. They report that the kidney stones are far worse. I’ve spoken to war veterans who were shot, and shredded by shrapnel. They report that kidney stones are far, far more painful than combat wounds. I have had several surgeries, including the kind where they make a large incision, and the post-surgery pain never remotely approached the real kidney stone experience.
A “real kidney stone” produces a pain so severe that if you can’t get relief within an hour, you desperately hope, and even pray, that you will die quickly. It is pain to the point of insanity. This is what I call 10/10 pain. If you have this level of pain, you seek medical help immediately. If you think you can go without medical help, you are not experiencing 10/10 pain. According to some doctors, most people don’t experience that level of pain ever in their lifetimes.
I have experienced it at least five times.
Due to two small tumors that developed when I was about thirty-five years old, I began to pass kidney stones roughly every six months. This went on for more than ten years until the problem was finally detected, and the offending tumors removed. I have passed somewhere around twenty-five stones.
Not every stone I had reached that 10/10 level of pain, but, as I mentioned, four of them did (more on the fifth time momentarily). The others may not have reached that level of insanity, but even a level of 7/10 puts you in a place where most of your energy and time is devoted to dealing with and riding out the pain. At that level, you might be able to watch TV, or play a mindless computer game to try and distract yourself, but meaningful work or interaction is not possible for more than a few minutes at a time. Most people take strong drugs if things get to 7/10. If those don’t work, the next step is the emergency room. By 8/10, and certainly by 9/10, everyone is heading there.
It took weeks at the world-renowned Mayo Clinic to identify and correct my tumor problem. My body finally stopped producing new stones, though, at that point, I still had several more in my kidneys waiting to pass. The Mayo clinic also explained what was causing the continuing pain problem.
All of that severe, intense pain that recurred regularly for more than ten years gradually changed my body. It did two things. First, it caused a rare kind of physical damage that cannot be surgically repaired. Second, it damaged my nerves. The end result is that even though I no longer produce them, I still feel the same pain as if I am passing kidney stone. I feel this pain all day, all night, every day for the past six years. That’s 2,190 days of kidney stone pain, or 52,560 hours, but who’s counting?
Of course I take pain medication for it. If I didn’t, I would have been dead a long time ago. What I have now is a virtual kidney stone that will never pass. That means the pain will never end. Medication does not really remove the pain. Most days I live at a 5/10. That’s halfway to insanity. On an average week, my pain creeps up to 7/10, or 8/10, two or three times. This is while I am taking pretty significant pain medication. Once in a while I’ll experience a few good days, where I might get down to four out of ten. Three out of ten is as rare as the Minnesota Vikings going to the Superbowl. This is not a low level of pain, pain I can ignore. If I take nothing for it, I end up in the emergency room. The last time I waited too long to medicate, I hit 10/10 pain for the fifth time.
If you want to try and experience what I feel on a minute by minute basis, trying lying flat on your back with your knees up. Tuck a golf ball just below your rib cage, two or three inches to the left of your spine. Now, rest all of your torso weight on that golf ball. That might approximate my daily, 5/10 pain experience. I am a strong, stoic person, so I may not be admitting to how much pain I really have. My wife tells me that I typically undersell it.
There is a reason I am emphasizing how bad my pain is, how difficult my daily life is. I want you to understand that what I go through is almost unbelievable, because what I want to say next is even more difficult to believe, but it is far more important.
I am so thankful to God for this pain.
I am closer to Jesus because of this pain.
Now, I don’t want to paint an unrealistic picture. Of course I struggle. Sometimes, I just don’t know how I can get through a day. I write a little. I try to go for a short walk. A car ride of more than forty-five minutes is certain to ramp up my pain something fierce. Sometimes playing a simple computer game helps distract me enough push the pain back just a little. I spend most of the time sitting or lying with a hot bag of rice on my kidney, which is the only thing that sort helps, besides medications that I should only take when I’m desperate. And I get desperate too often. I worry about getting the medications that keep me sane – many of them are controlled substances, and sometimes doctors make mistakes and that leads to lapses in getting what I need.
I want to be writing. I want to write this book. I want to finish the fifth in my mystery series. I want to write a book about house church. Meanwhile, I know I am called to feed the sheep of Jesus by teaching them Word, and by teaching them how to learn the Word for themselves. How can I do these things, things to which I feel strongly called, if all I can do is writhe in pain?
I need to remind myself to stop thinking in days. I need to remember to think moment by moment. Now is a good moment. A combination of things is keeping it at 5/10, and possibly I’ve had a few minutes of 4/10. I’ve just written five hundred words in one sitting. Before the pain, that would about a quarter of what I would have called a decent writing session. Maybe I should call that win for these days. Even now I feel the pain, crouching like a menacing shadow just beyond the light. It is growing. This good moment clearly has an expiration, and it isn’t far off. Soon it will be back to the grind.
But before I quit, I want to make sure you understand something of earth-shaking importance: There is something greater than the pain, something so good, so true, that even though the pain does not become less, it becomes less important.
Because I have been afflicted, I have experienced the love of God in a more deep, intense way. I am more certain than I have ever been of his love for me, and of mine for him. Experientially, I belong more fully to Jesus than I have ever before. This is not in spite of my suffering, but because of it.
I recently heard someone comment on the hymn, “It is Well With my Soul.” She said, “I wish I could have that. It just wish that it could be well with my soul, no matter what is going on.”
Brothers and sisters, today I do have that. It is well with my soul, in the middle of this moment-by-moment struggle, in the middle of five years of disappointed hopes and dead ends, and unanswered prayers. It is well with my soul as I cannot help but grunt or sigh in agony. It is well with my soul, though the prayers of thousands on my behalf have not been answered as asked. It is well with my soul as I toss and turn and squirm and try desperately to get comfortable to grab few hours of restless, unfulfilling sleep. It is well with my soul as I watch my writing career slowly grind down and lose momentum, because I do not have the energy to fight with this pain and do everything else I want to.
What I am about to say might require some major readjustments in your thoughts and attitudes. Especially, it might require some adjustments to your heart.
It can be well with your soul too.
5 thoughts on “IT IS WELL WITH MY SOUL”
Dear Pastor Tom, I can’t even imagine that kind of intense unending pain. My brother described it as passing glass through your body. Others have described it as worst than that of a woman in childbirth. I have studied in the medical profession and have seen all kinds of pain, so that even a Cancer patient on hospice can bring tears to my eyes. I will pray for you now and in the days to come. Your CURE is JESUS, as healing is only a temporary relief. Timothy
Thanks so much, Timothy
We are on the same page that all healing in this life is temporary,. anyway. Even Lazarus had to die again. But he’ll never die again,.now!
I’m glad that you wrote this. It is good to know and ponder.
You are such an awesome writer and I can so utterly relate. Ke kaha. (Maori)
Thank you for sharing. I can’t imagine struggling as you have for even an hour, let alone years. I thank God that you count it as a blessing and not a curse. You have helped me come to terms with my struggles as well. I found your blog when I googled “difference between Judas and Peter” and found your explanation very clear. May all those who struggle and stumble find faith in Our Lord as you and Peter have.